Voices

19  Nov  14 dee-sparacio-blog category Dee Sparacio

#gyncsm – A Growing Community | Dee Sparacio

In September 2013, I wrote about the establishment of the #gyncsm (gynecologic cancer social media) monthly tweet chat. Over the past year, #gyncsm discussed a variety of topics relevant to the gynecologic cancer community. During the hour-long online discussion we asked four to five questions on each month’s topic. At the conclusion of each chat, we posted the questions, a chat transcript and links to the resources mentioned during the chat on our blog (gyncm.blogspot.com).

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Voices

26  Jun  14 dee-sparacio-blog category Dee Sparacio

At the Center of it All | Dee Sparacio

Over the past nine years I have seen an increase in the number of non-profit organizations whose mission is to raise awareness of gynecologic cancers and funds for research. There are national organizations and many local gynecologic cancer organizations that consistently raise awareness about the risks and symptoms of gynecologic cancers via TV, radio, print, Twitter and Facebook. Other non-profits fund research host dinners, walks and runs, teas, and auctions. This private funding has been so important the past few years as government funding of cancer research has been reduced.

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Voices

06  Feb  14 dee-sparacio-blog category Dee Sparacio

Winter Reflections | Dee Sparacio

As I sat at my computer looking out the window at more than seven inches of snow in my yard, I began thinking back to the winters when I was in treatment. I remember how stressed I was that Mother Nature might cause me to miss a treatment. I used to worry that the snow might start during my infusion and I would have to figure out which way to drive home to avoid the steep hill. Thankfully, we only had snow one time on a treatment day, and it wasn’t even deep enough to cause me to change my route driving home. It is easy to enjoy the snow when you don’t have those stresses, but I know women in treatment who do have those stresses, women like those who attend the support group at my cancer center.

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Voices

18  Dec  13 dee-sparacio-blog category Dee Sparacio

Discovering CA-125 | Dee Sparacio

I didn’t even know CA-125 existed until I was diagnosed with Stage 3 ovarian cancer. CA-125 is a “tumor-associated protein” for ovarian cancer. It is found in the blood. Before surgery my CA-125 level was in the high 100’s (below 35 is considered normal). I learned from other women diagnosed with ovarian cancer that their numbers were in the 1000’s when they were initially diagnosed.

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Voices

18  Sep  13 dee-sparacio-blog category Dee Sparacio

It Takes a Community to Establish a Tweet Chat | Dee Sparacio

In January, I wrote a blog post on this site about my aspirations for the year. So far in 2013, I haven’t painted very often nor have I consistently exercised. But with the help of the gynecologic cancer community my aspiration to be part of a tweet chat has happened.

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Voices

13  Jun  13 dee-sparacio-blog category Dee Sparacio

To Test or Not to Test | Dee Sparacio

Recently Angelina Jolie was in the news, not for her latest movie, but for having a preventative mastectomy to reduce her risk of developing breast cancer.  Angelina had genetic testing done and had learned she carried the BRCA1 & 2 mutations. The mutations placed her at a higher risk for breast and ovarian cancer than the average women.  Jolie’s mother had passed away at the age of 56 due to ovarian cancer.

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