SGO Clinical Outcomes Registry: Pilot SGO COR program placed on hiatus
After careful assessment of the clinical and financial viability of the SGO Clinical Outcomes Registry (COR), Nov. 2017, the SGO Board of Directors decided to place SGO COR on hiatus. Effective Jan. 1, 2018, no new patient records will be accepted. Participating sites may continue to add follow-up patient data for existing patient records through the end of 2018. In 2019, the COR will no longer accept patient data. SGO will continue to explore collaborative gynecologic oncology registry opportunities with partners possessing adequate resources and infrastructure.
Since it was founded in 2013, over 7,000 patient records have been accrued from approximately 29 sites.
“This effort has demonstrated the ability to develop an in-depth gynecologic oncology registry with long-term outcome capability that is usable for quality reporting and outcomes research,” said SGO Past-President Laurel W. Rice, MD.
“At the same time, the SGO COR has faced a number of challenges, including manual data entry, variability of personal entering the data, and ability to adapt to the need for updating data fields including changes in clinical knowledge, therapy and quality outcome regulatory priorities,” said Dr. Rice. “Perhaps most significantly, financial support for the COR has yet to exceed expenses.”
Although SGO will no longer be maintaining the registry, Dr. Rice said that the SGO Board considers SGO COR to be a successful pilot program. By using the data collected on patients with cervical, endometrial or ovarian cancer, quality initiatives were developed and the data is under review for potential research projects. COR participants who have questions may contact Jessica Oldham at 312-676-3903.